About me
Sarah Chamberlin is Founder & Chief Program Officer of flok Health, a nonprofit advancing care and research for inherited metabolic disorders. She is a leader in patient-directed research and participatory data models, building community-powered data infrastructure that centers patient agency, transparency, and consent. flok’s app serves as both a daily care tool and a research platform, integrating lived experience into scientific progress. Her work is informed by personal experience as a parent of a child with Phenylketonuria (PKU).
